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Journey of Hope: Ugandan Children with Hydrocephalus and Spina Bifida Seek Vital Mobility Aids and Support

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Jovia Lanyero, a determined 16-year-old student with dreams of becoming a lawyer, is among a group of nine children with hydrocephalus who embarked on a challenging journey from their remote villages in Northern Uganda, spanning districts like Apac, Gulu Kwania, and Lira, to reach Kampala’s Corsu hospital. Their mission: to receive assessments and acquire modified wheelchairs, vital assistive devices that would enhance their daily lives.

Hydrocephalus is a medical condition characterized by the accumulation of fluid in the brain’s ventricles, increasing pressure on the brain. Simultaneously, Spina bifida is a congenital defect affecting the spinal column’s formation, resulting in a section of the spinal cord and spinal nerves exposed through an opening in the back.

For Jovia, who hails from Awich village, located 8 kilometers away from her boarding school, Over Champion Jesuit College in Gulu, these wheelchairs are not just mobility aids; they represent an opportunity to transform her life. Jovia’s aspirations extend beyond personal mobility; she aspires to advocate for the rights of children with disabilities and provide them with a better home. The support from the Spina Bifida and Hydrocephalus Association of Uganda (SHAU) and Corsu Hospital in Entebbe, as well as the generosity of donors, has enabled her to move more comfortably and take a significant step toward realizing her dreams.

The arduous journey undertaken by Jovia and her companions mirrors the experiences of many children with Spina bifida and Hydrocephalus, their parents, and caregivers. To access essential healthcare and assistive mobility devices, they endure long and grueling journeys, often spanning up to 12 hours on the road.

Nyeko Robert Bob, a taxi driver hired to transport these children from northern Uganda to Kampala, recounted the challenges they faced on the road. The journey began at 7 am, picking children from various districts in town centers, but the conditions grew more difficult when they reached the rural areas. Impassable roads, dust, and the absence of restroom facilities added to their ordeal. Nyeko’s dedication to these children, who require extra care and attention, reflects the profound need for support in these situations.

Harriet Ayugi Raps, a teacher from Apac district and a mother of a 13-year-old child with Hydrocephalus, shared a heart-wrenching story of delayed diagnosis and treatment. Despite visiting numerous hospitals in the northern region of Uganda, it took her over three months to find a diagnosis and secure treatment for her child at CURE Hospital in Mbale. By then, it was tragically too late to prevent her child’s disability, leaving her unable to attend school. Expensive mobility devices, like wheelchairs, compounded the challenge as they were inaccessible in the region. Harriet’s experience is emblematic of the struggles many parents face, and she attributes her family’s hope to SHAU, which provides education and assistance.

However, access to mobility devices remains a critical issue in the region. Without modernized assistive devices, children with disabilities are often carried in wheelbarrows or left on the ground due to the sheer difficulty of mobility. Schools lack essential facilities to accommodate their needs, such as adapted toilets and bathing areas. Harriet called upon the government to mandate such facilities in schools to create a more inclusive educational environment.

Despite these challenges, there are success stories. Some children with Spina bifida and Hydrocephalus have defied the odds, completing their studies and pursuing careers. These achievements underscore the importance of understanding and accommodating these children’s unique needs, both in terms of education and financial support.

Kawuma Fortunate Benjamin, who has lived with Hydrocephalus for 27 years, emphasized the significance of assistive devices, such as wheelchairs, walking crutches, and prone boards, in improving daily life. He urged individuals with disabilities to cherish these devices, treat them as extensions of their bodies, and resist using them for inappropriate tasks.

Hon. Mpindi Bumali, the Member of Parliament representing persons with disabilities, commended SHAU for its efforts to improve the lives of individuals with Hydrocephalus and Spina Bifida. Bumali stressed the importance of mobility appliances for persons with disabilities, calling for the revamping of rehabilitation centers to provide affordable or free artificial limbs, crutches, and wheelchairs.

Bumali also highlighted the need to make medication more affordable for individuals with these conditions, advocating for their inclusion in the list of free medications in government facilities.

Esther Kyoziira, CEO of the National Union of Disabled Persons of Uganda (NUDIPU), called for improved service delivery for children with Spina Bifida and Hydrocephalus, particularly when it comes to affordable or free surgeries at Cure Hospital.

Efforts are also underway to educate communities about these conditions and encourage early intervention during pregnancy. Ruth Nalugya, the National Coordinator for Spina Bifida and Hydrocephalus Association of Uganda (SHAU), emphasized the importance of government support for local manufacturers of orthopedic mobility devices. She suggested that reduced taxes on materials for manufacturing could lower the prices of these crucial devices, improving accessibility.

Transportation remains a significant challenge for individuals with disabilities, with public transport often lacking the necessary accommodations. Nalugya called for better facilities and respect for those using wheelchairs and crutches on the road.

Additionally, she stressed the need for improved access to information, including sign language interpreters and clear communication from healthcare providers.

Despite the challenges and misconceptions surrounding these conditions, there is hope for change. The Assistant Commissioner of the Disability and Rehabilitation Division in the Ministry of Health, Mubangizi Andrew, outlined the ministry’s efforts to provide comprehensive healthcare services for individuals with Spina Bifida and Hydrocephalus. A new policy is in the final stages, aimed at enhancing coordination and quality service delivery.

As we approach World Spina Bifida and Hydrocephalus Day on October 25th, the theme of “Accessibility for All” underscores the need for improved support and awareness for those affected by these conditions. In Uganda, an estimated 6,000 to 8,000 children are born with Spina Bifida and Hydrocephalus annually, making accessibility to specialized healthcare and mobility devices critical to improving their quality of life.


Prime Minister Robinah Nabbanja Applauds Gomba District’s Thriving Agricultural Efforts

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Prime Minister Robinah Nabbanja Applauds Gomba District's Thriving Agricultural Efforts lowethird

The Prime Minister of Uganda, The Right Honourable Robinah Nabbanja, expressed commendation for the residents of Gomba district, praising their active involvement in agriculture not just as a means of sustenance but as a pathway to economic prosperity.

During her address on Friday at the Gomba District Agricultural Expo organized by the Office of the Prime Minister, Nabbanja urged the community to diversify into high-value crops and adopt irrigation practices for year-round production. She emphasized that their commitment to agriculture is a crucial driver of economic growth.

The expo, attended by key figures in the agricultural sector, featured suppliers of agro-inputs and machinery, exemplary farmers, and specialists in agro-processing.

Addressing the necessity for improved electricity access, the Prime Minister reiterated the government’s commitment to providing free power connections to homes. She encouraged residents to wire their houses, emphasizing that this initiative aims to elevate living standards and create economic opportunities.

Nabbanja also directed the District Health Officer to submit a letter requesting the elevation of Kanoni Health Center III to Health Center IV, aligning with the government’s policy of establishing one Health Center IV in every constituency. She assured the people of Gomba West that steps would be taken to transform Kanoni Health Centre III into Health Center IV.

In a related context, Namayanja Rose Nsereko, the Deputy Secretary General of the National Resistance Movement (NRM), stressed the crucial role of community leaders in monitoring and following up on government projects. She emphasized the importance of leaders acquiring knowledge about these initiatives and effectively communicating with the public.

Namayanja underscored the significance of political participation, highlighting the NRM caucus as a key platform for strategic decision-making. She encouraged residents to support NRM flagbearers to ensure their voices are heard.

Sylvia Nayebale, the Gomba Woman MP, expressed gratitude for the government’s efforts to improve electricity connectivity in the region. She acknowledged the positive impact of the reduced cost of the last-mile connection and urged for continued support and more connections to further enhance the lives of the residents.

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Valuable Medications Worth Millions Ruined by Rain in Busia

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Valuable Medications Worth Millions Ruined by Rain in Busia lowethird

In a shocking turn of events, the tranquil district of Busia has become the epicenter of a grave incident, as millions’ worth of essential medicines were irreparably damaged by the relentless onslaught of rain. Security officials in Busia have launched an investigation into this catastrophe, leading to the apprehension of five individuals whose roles in this unfortunate episode are now under scrutiny.

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The medications, a critical lifeline for many residents of Busia, were part of a substantial shipment provided to the district by the National Medical Stores, with an estimated value reaching into the hundreds of millions of shillings. The drugs encompassed essential treatments for prevalent and life-threatening diseases, including malaria and HIV/AIDS.

The calamity has left the district and its healthcare system in disarray, prompting an urgent inquiry into the circumstances that allowed such a disaster to transpire. Among those now in custody is the Busia District Health Officer, a pivotal figure who held the responsibility of overseeing the distribution and proper storage of these vital medications.

The news of the medicines’ exposure to the elements and subsequent damage has sparked widespread concern and frustration among the district’s residents. Many had been reliant on these drugs for their health and well-being, and the loss is not only a financial blow but also a blow to the health of the community.

As investigations are underway, questions arise regarding the responsible parties, the lapses in the medication’s storage and safeguarding, and the potential consequences of this catastrophic incident. The implications of this loss extend far beyond the financial realm, as it threatens to disrupt the healthcare services and well-being of those who desperately depend on these essential treatments.

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The story of Busia’s ruined medications serves as a stark reminder of the vital importance of effective infrastructure and protective measures for the storage and distribution of life-saving medicines. The incident underscores the need for accountability and meticulous oversight in the healthcare sector, especially when it comes to safeguarding valuable resources and ensuring the well-being of the community.

As the investigation continues, the residents of Busia await answers and seek reassurance that such a devastating incident will not recur, and that measures will be put in place to prevent the loss of essential medicines in the future.

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Uganda Aids Commission Takes a Bold Step to Combat HIV Stigma with New Guidelines for People Living with Disabilities

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Uganda Aids Commission Takes a Bold Step to Combat HIV Stigma with New Guidelines for People Living with Disabilities lowethird

The Uganda Aids Commission (UAC) has embarked on a significant endeavor aimed at combating HIV stigma and discrimination among people living with disabilities. To address this issue comprehensively, UAC has unveiled a translated version of the national policy guidelines designed to end the persistent stigma and discrimination surrounding HIV, which has long afflicted this marginalized demographic. The primary beneficiaries of this initiative are members of the deaf and blind communities, who have faced unique challenges due to the lack of accessible and critical information regarding HIV.

This groundbreaking move comes as a response to a pressing need within these communities. The associations representing the deaf and blind have been vocal about the significant information gap that has left many of their members vulnerable to HIV and compelled them into risky behaviors due to a lack of choice. The translated guidelines aim to bridge this information deficit and create a more inclusive and informed environment for individuals with disabilities.

The launch of these translated guidelines marks a pivotal moment in the fight against HIV-related stigma and discrimination in Uganda. Historically, people with disabilities, particularly those who are deaf and blind, have faced a double burden – not only dealing with their disabilities but also contending with the misinformation, discrimination, and marginalization associated with HIV. These individuals have been disproportionately affected by the negative consequences of HIV stigma, which includes a lack of access to healthcare, social exclusion, and a higher risk of contracting the virus.

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UAC’s decision to make these policy guidelines accessible to the deaf and blind communities underscores their commitment to leaving no one behind in the fight against HIV. It is a testament to their dedication to ensuring that individuals living with disabilities have the tools and knowledge they need to protect themselves from HIV and access appropriate healthcare services when necessary.

The translated guidelines not only offer information about HIV prevention but also provide valuable insights into living with HIV for those who are already affected. They cover a wide array of topics, including testing, treatment, disclosure, and sexual and reproductive health, with a focus on addressing the unique needs and challenges of individuals with disabilities.

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In addition to benefiting the deaf and blind communities directly, this initiative also aligns with broader global efforts to achieve the Sustainable Development Goals, particularly Goal 3, which aims to ensure good health and well-being for all. By focusing on reducing HIV stigma and ensuring that people living with disabilities are informed and protected, the UAC is contributing to a more inclusive and healthier society for all Ugandans.

The launch of these translated guidelines represents a significant step towards ending the stigmatization and discrimination that have persisted for far too long. It is a clear message that every Ugandan, regardless of their abilities, has the right to accurate information about HIV, access to healthcare, and protection from stigma and discrimination. It sets the stage for a more inclusive and compassionate approach to tackling the HIV epidemic in Uganda.

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Hazues .com : Oriajin Hospital Launches Crowdfunding Campaign to Enhance Healthcare in Terego District

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Hazues .com : Oriajin Hospital Launches Crowdfunding Campaign to Enhance Healthcare in Terego District lowethird

As the Sole State-Funded Healthcare Facility in the Region, Oriajin Hospital Seeks Community Support to Overcome Resource Challenges

Terego District,– Oriajin Hospital, a vital healthcare institution located in the heart of Terego District, has embarked on a groundbreaking crowdfunding campaign to bolster its commitment to providing essential medical services to the community. Being the sole state-funded healthcare facility in the region, the hospital plays a crucial role in the healthcare ecosystem. However, it faces challenges in maintaining and expanding its services due to limited resources.


Campaign Objectives:

In an effort to address these pressing needs and ensure that healthcare services in Terego District remain accessible and of high quality, Oriajin Hospital has outlined the following campaign objectives:

1. Infrastructure Development (30%): Oriajin Hospital is in dire need of significant infrastructure upgrades to improve patient care and overall facilities. This includes essential building maintenance, the upgrading of medical equipment, and creating a conducive environment for both patients and medical staff.

2. Medical Supplies and Equipment (40%): The hospital currently lacks some vital medical supplies and advanced equipment necessary for various treatments and diagnoses. By enhancing these resources, Oriajin Hospital aims to significantly improve the quality and effectiveness of its healthcare services.

3. Training and Development (15%): Continuous training and development for the medical staff are vital to ensure the delivery of updated and quality healthcare services. This campaign is focused on supporting ongoing education and training programs for the hospital staff, allowing them to stay updated on the latest medical practices.

4. Community Health Initiatives (15%): In its endeavor to expand its reach, Oriajin Hospital plans to launch community health initiatives to improve health awareness and preventive care within Terego District. These programs will aim to promote community health and educate the public on the importance of preventative healthcare measures.

Impact of the Campaign:

The successful execution of this crowdfunding campaign is expected to bring about several positive changes:

  • Improved healthcare services for the Terego District community, ensuring that essential medical care is readily available.
  • Enhanced medical facilities will lead to better diagnosis and treatment, making a significant difference in patient outcomes.
  • Continuous training and development of medical staff will empower them to provide updated and high-quality healthcare services.
  • Community health initiatives will contribute to greater health awareness and more proactive health management among residents.

Budget and Financial Accountability:

Transparency and financial accountability are of paramount importance. An external committee will oversee the allocation and utilization of funds to ensure that every donation is used to its fullest potential. Regular updates will be provided to all donors, showcasing how their contributions are being utilized and the impact they have created. : Urgent Medical Funds Needed to Save a Life: Kirabo Hawa’s Battle Against the Odds

In conclusion, the Oriajin Hospital crowdfunding campaign is an opportunity for the community to come together and make a significant difference in healthcare services within Terego District. Your support is crucial to ensure that quality healthcare is accessible to all residents. By contributing to this campaign, you are directly impacting the lives and well-being of countless individuals in need. Let us join hands and work collectively to improve healthcare in Terego District. Thank you for your generosity and support.

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Health : Urgent Medical Funds Needed to Save a Life: Kirabo Hawa’s Battle Against the Odds

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In a race against time, Kirabo Hawa Nalubwama, a courageous individual, is facing a multitude of health challenges, including a Hepatitis B diagnosis, a damaged liver, kidney complications, malnourishment, and a severe infection in her left hand ring finger. These health conditions have collectively placed Hawa’s life in jeopardy, requiring a life-saving intervention.

The critical step to save Hawa’s life is the amputation of her left hand wrist. This procedure is deemed vital to prevent the further spread of infection and to halt the worsening of her overall health. The surgery, which comes with considerable expenses, is scheduled to be performed at Mulago Hospital.

The total amount required for Hawa’s medical treatment, including the amputation surgery, is estimated at 5,000,000 Ugandan Shillings. While this figure may seem daunting, it represents the hope of a healthier, brighter future for Kirabo Hawa Nalubwama.


To make this life-saving treatment a reality, we are reaching out to compassionate individuals and organizations for their support and financial assistance. Every contribution, regardless of its size, will contribute to providing Hawa with a fighting chance to regain her health.


Contributions can be sent to the following contacts:

Erios Namugambe Contact Number: +256751964472

Hawa Nalubwama Contact Number: 0786458623

Your contribution will not only cover the costs of her essential medical procedures but also bring comfort and hope to Hawa and her family during this challenging period.

Hawa’s fight is a testament to her resilience and the power of community support. With your help, we can ensure that she receives the medical care she urgently needs. Your kindness can change the course of Kirabo Hawa Nalubwama’s life, and we thank you for considering our appeal. Together, we can save a life and make a difference in her journey to recovery.

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Health : Supporting Young Bosco’s Dreams: A Plea for a Brighter Future

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WhatsApp Image 2023 10 23 at 3.24.34 AM e1698427984859 : Supporting Young Bosco's Dreams: A Plea for a Brighter Future lowethird

In a world filled with dreams and aspirations, it is our duty to ensure that every child has the opportunity to see their dreams come to life. This is the heartfelt plea we bring to you today, as we introduce you to a remarkable young boy named Bosco. At just 2 years old, Bosco is a brave soul who is currently living with his devoted grandmother. His simple wishes revolve around a stable home and access to nourishing food, dreams that we are determined to transform into reality.


Bosco’s Journey: Bosco’s life began with a challenging start, and he continues to face obstacles that no child should ever have to endure. Despite these difficulties, he has found solace in the loving care of his grandmother. However, there are essential aspects of a child’s life that still elude him. Bosco’s dreams are humble yet profound: a safe and stable home and the regular assurance of nourishing meals.

Our Vision for Bosco: At the heart of this plea is a shared vision. We believe that every child, regardless of their circumstances, should have the opportunity to thrive and grow in a secure and nurturing environment. Our vision is to provide Bosco with a brighter future, one that we hope to create with your invaluable assistance.

Addressing the Need: Bosco’s current living conditions fall far short of the ideal. His devoted grandmother, who is doing her utmost to provide for him, faces financial constraints that hinder their access to a comfortable living space and regular, nutritious meals. It is our collective aim to rectify this situation. Our goal is to secure a stable home for Bosco and ensure that he never has to go to bed hungry.

Your Role in Transforming Bosco’s Life: Now, we turn to the kindness and generosity of our community, friends, and well-wishers, seeking your support in making Bosco’s dreams come true. Here’s how you can play a significant part in transforming Bosco’s life:

1. Financial Support: Your donations will be directed towards securing a better housing situation for Bosco and his grandmother. It will also ensure that they have the means to access nutritious food on a regular basis. Every contribution, no matter how small, makes a meaningful difference.

2. Spread the Word: Sharing Bosco’s story with your friends and family can have a profound impact. The more people who hear about Bosco’s dreams, the closer we come to making them a reality.

Our Commitment: Rest assured that we are committed to full transparency and accountability in this fundraising effort. Every donation will be utilized to directly enhance Bosco’s living conditions, guaranteeing a safe and stable home for him and regular access to nourishing meals.

Bosco, this courageous 2-year-old, has simple dreams for a better life – dreams of a secure home and regular access to nutritious food. With your help, we can turn these dreams into a beautiful reality. Let’s come together as a community to make Bosco’s wishes come true.

Your support holds immeasurable value to Bosco and his grandmother. Together, we can offer Bosco the chance for a brighter future. We express our heartfelt gratitude for your compassion and generosity.

Please consider making a donation to support Bosco today. Your kindness will create a lasting impact on his young life.

Donate Now and Make Bosco’s Dreams Come True.

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